For decades, I’ve fought for my sons who were diagnosed late with cystic fibrosis and still face barriers to life-saving treatments. I continue to fight every day — taking no days off — because no ...

While relocating to a new state, my family faced some unexpected hurdles. But with the incredible support of our community, we survived the journey.

I never expected a simple musical hobby to introduce me to a global community of resilient and optimistic individuals. Each week, I now have the pleasure of interacting with those with CF around the ...

Dear Majority Leader Thune, Minority Leader Schumer, Speaker Johnson and Minority Leader Jeffries: On behalf of the undersigned patient, healthcare professional and industry organizations, we urge you ...

Today, 27 leading patient, provider and professional organizations sent a letter to Congress to include the Supplemental Oxygen Access Reform (SOAR) Act (H.R. 2902/S.1406) in an end-of-year ...

The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...

In the past decade or so, I've learned that when people in the CF community find out I'm an opera singer, or that I don't use a vest as an airway clearance technique (ACT), they often assume that I ...

I've been thinking of my life after Trikafta as a series of pros and cons ... like on “Friends” when Ross made a list to figure out why he should/should not date Rachel. Ross needed to decide if he ...

Blue skies and energy from the sun's radiant heat nourished my body. I soaked in the rays outside my home in Lancaster, Ohio, fielding calls and messages from all over the world. People wished me well ...